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Hi, I'm New here and wondered if someone can help, I'm sorry my post is so long winded.
After years of waiting i was finally diagnosed with small duct idiopathic chronic pancreatitis at the end of 2012 beginning of 2013. My surgeon said I needed a total pancreatectomy with autologous islet cell transplant, he then said pre 2012 I could have had it done but, due to the agenda for change, the NHS are changing the way it's funded. After years of waiting, due to ridiculous excuses and bureaucracy, last year on the NHS birthday they finally announced they were going to routinely fund it, more bureaucracy and last month my surgeon said I could have it, although it will take a while for the labs to get back up and running again, so yet more waiting, probably another year.
My surgeon is very well respected in his field and has fought for this funding for years, due to my medical training i fully understand the ways in which the nhs has postponed the funding, for some absolutly rediculous reasons, it actually beggers believe. My surgeon told me that it was pointless applying for individual funding because not one person has been successful with their bid, except one woman who was a gp and the cousin of william hague, apparently my surgeons team was flown to newcastle to do the operation on her, no word of a lie....its unbelievable, but true.
The cost of the operation is £250,000, my surgeon assumes thats the problem but, because my problem is rare, there are only approx 40 people waiting, so really its not that much of the NHS budget. I was a paediatric nurse doing a post grad when I finally had to retire in 2006. I have been in agonising pain and have severe depression, I only live for my daughter. My quality of life has deteriorated over the years and all treatments give little or no relieve. My question is, if the operation is a success and I finally get to live a normal life, can I sue the nhs for the years I've spent waiting for them to make a decision.
Thank you for taking the time to read.
After years of waiting i was finally diagnosed with small duct idiopathic chronic pancreatitis at the end of 2012 beginning of 2013. My surgeon said I needed a total pancreatectomy with autologous islet cell transplant, he then said pre 2012 I could have had it done but, due to the agenda for change, the NHS are changing the way it's funded. After years of waiting, due to ridiculous excuses and bureaucracy, last year on the NHS birthday they finally announced they were going to routinely fund it, more bureaucracy and last month my surgeon said I could have it, although it will take a while for the labs to get back up and running again, so yet more waiting, probably another year.
My surgeon is very well respected in his field and has fought for this funding for years, due to my medical training i fully understand the ways in which the nhs has postponed the funding, for some absolutly rediculous reasons, it actually beggers believe. My surgeon told me that it was pointless applying for individual funding because not one person has been successful with their bid, except one woman who was a gp and the cousin of william hague, apparently my surgeons team was flown to newcastle to do the operation on her, no word of a lie....its unbelievable, but true.
The cost of the operation is £250,000, my surgeon assumes thats the problem but, because my problem is rare, there are only approx 40 people waiting, so really its not that much of the NHS budget. I was a paediatric nurse doing a post grad when I finally had to retire in 2006. I have been in agonising pain and have severe depression, I only live for my daughter. My quality of life has deteriorated over the years and all treatments give little or no relieve. My question is, if the operation is a success and I finally get to live a normal life, can I sue the nhs for the years I've spent waiting for them to make a decision.
Thank you for taking the time to read.
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