Sparkie

[Sparkie1723]

Re: Sparkie

Today is crunch day for Margaret & me..............She has been monitored for the last 18 months and today I have to take her to the Countess of Chester Hospital mental health clinic to see the top Psychiatrist Guy...............Margie has never been officially diagnosed and recorded as being a Dementia sufferer........so they now tell me......which I don't really understand why .......today she will be assessed as to what type of dementia she has, and officially recorded on her medical files.
I hope to know more after 2.00pm today.......................Anyone any thoughts on this ........as to why it has this taken so long to get around to this.
Comments anyone
Sparkie

[Amethyst]

Re: Sparkie

Presumably knowing the type ( alzheimers, vasular, frontal ) will help know how to manage her condition and treat it, and manage risks. Plus if anything happens ( accident / illness etc) it will show on her notes so she can receive appropriate care.

[Sparkie1723]

Re: Sparkie

Presumably knowing the type ( alzheimers, vasular, frontal ) will help know how to manage her condition and treat it, and manage risks. Plus if anything happens ( accident / illness etc) it will show on her notes so she can receive appropriate care.

Thanks Amethyst
I guess you are 100% right.........but I can't understand why its taken so long. I can say that I do get one day a week respite ....she goes to a day respite centre on a Wednesday.
The trouble is she understands where she is going today and is getting VERY agitated at this moment about it so will have to log off...bvack this afternoon I hope
Sparkie

[enaid]

Re: Sparkie

Hi Sparkie, hope all goes well today for you and Margaret and you get some answers to questions you may have.
There is a bit of info HERE about the diagnosis and time scales, not that any times scales can be guaranteed any more on the NHS sadly.
One thing I have discovered with Dementia through my dad and my MIL is how much the sufferer can and does change when any sort of medical appointment is on the cards. Seems as though a trigger switches on and all of a sudden most of their symptoms have gone. Not that this is the case in truth, it just seems that way.
My OH has just this minute left to take his mum in respite and assessment unit she should be in for approx 2 weeks.
As i have said before you must ask for, or not refuse any help that you can get both with caring and finance. The more you plod on regardless the more you will be left to do so, until there comes a point where you can cope no more and drastic steps may have to be taken.
Good Luck.
Enaid x

[Sparkie1723]

Re: Sparkie

I now know more........Margaret has alzheimers, frontal temporal and vascular dementure..........she has been taken off the donzeprazil tabs and is going to be prescribed what was explained as a calming drug .....not valium related but acts as a kind of balm to the brain....to soothe any agitation ...............the Dr did say I do have a big task on my hands in the very near future............good job M's daughter Lyn gives me a hell of lot of support and a lot of her time.............she is one in 10 million without a doubt.
Thanks everyone for your support with my problems.
Sparkie

[Amethyst]

Re: Sparkie

Gosh, all 3, well at least you have a full diagnosis now and treatment can be adapted accordingly so at least she's not suffering herself too much xxx

(((((((((((((((((((((((( hug )))))))))))))))))))))))))))))))) for you and for Margaret xxxxxxxxxxx

[Sparkie1723]

Re: Sparkie

Gosh, all 3, well at least you have a full diagnosis now and treatment can be adapted accordingly so at least she's not suffering herself too much xxx

(((((((((((((((((((((((( hug )))))))))))))))))))))))))))))))) for you and for Margaret xxxxxxxxxxx

Thank you so very much Amethyst:tinysmile_kiss_t4:............No she isn't suffering as such..............I'm not sure how to say this , but she is happy in herself except when she gets confused which sets of the agitation and frustration to the extant sometimes she does attack me and within seconds realises what she has done and comes and puts her arms around and sobs that she is sorry.....................THAT KILLS ME EVERYTIME.
Sparkie

[dogtired]

Re: Sparkie

:_tighthug__by_darkm xx

[charitynjw]

Re: Sparkie

Wishing you guys all the very best.

Wishing hard!

Regards

c

[Amethyst]

Re: Sparkie

As Nelly said before make sure you, and Lyn, accept help that's offered xx

[TINKEY2]

Re: Sparkie

Not that it's a plus but at least Margaret has been diagnosed (should never have took that long!!). Being on the correct medication will help a lot.

As above and I have said before PLZ PLZ take all the help you can get. You do so much BUT you can't do it all, it will take it's toll on your health too.

Wish I could do more.........always on the other end of the phone, day or night xx

PLZ look after yourself as well.

TINKS XX

[Openlaw15]

Re: Sparkies Better Half and Caravan Dealer

No-one knows what I'm going through ..................one or two who have had to deal with dementure have an idea but no-one really knows.............the person I knew just 3 months ago just isn't here any more........just a human frame .............a couple of times she has forgotten my name...........
S

She is there you just have to work hard to find her. You have all those memories of her that you have built together. On your bad days, think of the good days.

[Sparkie1723]

Re: Sparkie

M has had her medication changed to Memantine Hydrochloride Oral solution ..................any fellow cares have their partners or wards on this ..............and give ideas/reports on how good it is etc etc.
Would appreciate it....................have had a rundown by the medical people .......but always like any extra info if available from first hand.

Sparkie

[charitynjw]

Re: Sparkie

Hi Sparkie

No personal experience, but I found this.

[Sparkie1723]

Re: Sparkie

Hi Sparkie

No personal experience, but I found this.

Thanks CTW,
Already read this................plus others
Sparkie.